HB1420: Newborn screening; Krabbe disease and other lysosomal storage disorders shall be included in test.


Offered January 14, 2015
Prefiled December 22, 2014
A BILL to amend and reenact § 32.1-65 of the Code of Virginia, relating to newborn screening; Krabbe disease.
Patron-- Plum

Committee Referral Pending

Be it enacted by the General Assembly of Virginia:

1. That § 32.1-65 of the Code of Virginia is amended and reenacted as follows:

§ 32.1-65. Certain newborn screening required.

In order to prevent intellectual disability and permanent disability or death, every infant who is born in the Commonwealth shall be subjected to atscreening tests for various disorders consistent with, but not necessarily identical to, the uniform condition panel recommended by the U.S. Secretary of Health and Human Services and the Secretary's Advisory Committee on Heritable Disorders in Newborns and Children. Such screening tests shall include a screening test for Krabbe disease and other lysosomal storage disorders.

Any infant whose parent or guardian objects thereto on the grounds that such tests conflict with his religious practices or tenets shall not be required to receive such screening tests.

The physician or certified nurse midwife in charge of the infant's care after delivery shall cause such tests to be performed. The screening tests shall be performed by the Division of Consolidated Laboratory Services or any other laboratory the Department of Health has contracted with to provide this service.

The program for screening infants for sickle cell diseases shall be conducted in addition to the programs provided for in Article 8 (§ 32.1-68 et seq.).