Rare Disease Advisory Council; created, report. (HB1995)

Introduced By

Del. Kathleen Murphy (D-McLean)


Passed Committee
Passed House
Passed Senate
Signed by Governor
Became Law


Rare Disease Advisory Council; report. Creates the Rare Disease Advisory Council in the executive branch of state government to (i) advise the General Assembly and other agencies, departments, commissions, and authorities in the Commonwealth on the needs of individuals with rare diseases in the Commonwealth; (ii) explore challenges that such individuals face, including delays in obtaining a diagnosis or the receipt of a misdiagnosis, shortages of medical specialists who can provide treatment, and lack of access to therapies and medication used to treat rare diseases; and (iii) secure funding for research for the development of new treatments for rare diseases and support for persons with rare diseases in the Commonwealth. Read the Bill »


01/19/2021: In Subcommittee


01/11/2021Prefiled and ordered printed; offered 01/13/21 21101216D
01/11/2021Referred to Committee on Health, Welfare and Institutions
01/18/2021Impact statement from DPB (HB1995)
01/19/2021Referred to Committee on Appropriations
01/19/2021Reported from Health, Welfare and Institutions (20-Y 0-N)
01/19/2021Assigned App. sub: Health & Human Resources

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