Rare Disease Council and Rare Disease Council Fund; created, report. (HB1995)

Introduced By

Del. Kathleen Murphy (D-McLean) with support from 11 copatrons, whose average partisan position is:

Those copatrons are Del. Dawn Adams (D-Richmond), Del. Lee Carter (D-Manassas), Del. Patrick Hope (D-Arlington), Del. Mark Keam (D-Vienna), Del. Mark Levine (D-Alexandria), Del. Ken Plum (D-Reston), Del. David Reid (D-Loudoun), Del. Danica Roem (D-Manassas Park), Del. Marcus Simon (D-Falls Church), Del. Shelly Simonds (D-Newport News), Del. Suhas Subramanyam (D-Sterling)

Progress

Introduced
Passed Committee
Passed House
Passed Senate
Signed by Governor
Became Law

Description

Rare Disease Council and Rare Disease Council Fund; report. Creates the Rare Disease Council for the purpose of (i) advising the Governor and the General Assembly on the needs of individuals with rare diseases in the Commonwealth; (ii) identifying challenges that such individuals face, including delays in obtaining a diagnosis or the receipt of a misdiagnosis, shortages of medical specialists who can provide treatment, and lack of access to therapies and medication used to treat rare diseases; (iii) funding research related to rare diseases and the development of new treatments for rare diseases; and (iv) funding for supports for persons with rare diseases in the Commonwealth. The bill also creates the Rare Disease Council Fund to be used for the purpose of (a) funding research related to rare diseases and the development of new treatments for rare diseases and supports for persons with rare diseases in the Commonwealth and (b) supporting the work of the Rare Disease Council. Read the Bill »

Status

03/24/2021: signed by governor

History

DateAction
01/11/2021Prefiled and ordered printed; offered 01/13/21 21101216D
01/11/2021Referred to Committee on Health, Welfare and Institutions
01/18/2021Impact statement from DPB (HB1995)
01/19/2021Reported from Health, Welfare and Institutions (20-Y 0-N) (see vote tally)
01/19/2021Referred to Committee on Appropriations
01/19/2021Assigned App. sub: Health & Human Resources
01/25/2021House subcommittee amendments and substitutes offered
01/25/2021Subcommittee recommends reporting with substitute (7-Y 0-N)
01/25/2021Reported from Appropriations with substitute (22-Y 0-N) (see vote tally)
01/25/2021Committee substitute printed 21103655D-H1
01/26/2021Read first time
01/26/2021Impact statement from DPB (HB1995H1)
01/27/2021Read second time
01/27/2021Committee substitute agreed to 21103655D-H1
01/27/2021Engrossed by House - committee substitute HB1995H1
01/28/2021Read third time and passed House BLOCK VOTE (100-Y 0-N)
01/28/2021VOTE: Block Vote Passage (100-Y 0-N) (see vote tally)
01/29/2021Constitutional reading dispensed
01/29/2021Referred to Committee on Education and Health
02/05/2021Continued to 2021 Sp. Sess. 1 in Education and Health (15-Y 0-N) (see vote tally)
02/11/2021Reported from Education and Health (14-Y 0-N) (see vote tally)
02/11/2021Rereferred to Finance and Appropriations
02/17/2021Constitutional reading dispensed (39-Y 0-N) (see vote tally)
02/17/2021Reported from Finance and Appropriations (16-Y 0-N) (see vote tally)
02/18/2021Read third time
02/18/2021Passed Senate (38-Y 0-N) (see vote tally)
02/18/2021Reconsideration of Senate passage agreed to by Senate (39-Y 0-N) (see vote tally)
02/18/2021Passed Senate (39-Y 0-N) (see vote tally)
02/22/2021Enrolled
02/22/2021Bill text as passed House and Senate (HB1995ER)
02/22/2021Impact statement from DPB (HB1995ER)
02/22/2021Signed by President
02/24/2021Signed by Speaker
02/25/2021Enrolled Bill communicated to Governor on February 25, 2021
02/25/2021G Governor's Action Deadline 11:59 p.m., March 31, 2021
03/24/2021G Approved by Governor-Chapter 303 (effective 7/1/21)
03/24/2021G Acts of Assembly Chapter text (CHAP0303)

Post a Public Comment About this Bill



if you have one


(Limited HTML is OK: <a>, <em>, <strong>, <s>)