Alpha-gal syndrome; Board of Health shall adopt regulations to include on reportable disease list. (HB93)

Introduced By

Del. Otto Wachsmann (R-Sussex) with support from co-patron Del. Josh Thomas (D-Gainesville)

Progress

Introduced
Passed Committee
Passed House
Passed Senate
Signed by Governor
Became Law

Description

Alpha-gal syndrome; Board of Health; reportable disease list. Directs the Board of Health to adopt regulations to include alpha-gal syndrome on the list of diseases that shall be required to be reported in accordance with the Code of Virginia. The bill has a delayed effective date of July 1, 2025. Read the Bill »

Notes

According to the fiscal impact statement, the legislation would have a minimal fiscal impact on the Commonwealth. The initial cost to update the web-based portal to include alpha-gal syndrome is estimated at $36,000, which can be handled within existing resources. However, additional public health actions beyond the requirements of the bill would require an additional $151,223 annually and one position within the Virginia Department of Health to manage data, analyze reports, and coordinate care and prevention activities related to alpha-gal syndrome.

Summary generated automatically by OpenAI.

Outcome

Bill Has Passed

History

DateAction
12/30/2023Committee
12/30/2023Referred to Committee on Health and Human Servicess
12/30/2023Prefiled and ordered printed; offered 01/10/24 24103668D
12/30/2023Referred to Committee on Health and Human Services
01/15/2024Assigned sub: Health
01/17/2024Assigned sub: Health
01/23/2024House subcommittee amendments and substitutes offered
01/23/2024Subcommittee recommends reporting with substitute (8-Y 0-N)
01/23/2024Subcommittee recommends referring to Committee on Appropriations
01/25/2024Reported from Health and Human Services with substitute (22-Y 0-N) (see vote tally)
01/25/2024Committee substitute printed 24106019D-H1
01/25/2024Referred to Committee on Appropriations
01/26/2024Assigned App. sub: Health & Human Resources
01/29/2024Impact statement from DPB (HB93H1)
02/02/2024Subcommittee recommends reporting (8-Y 0-N)
02/05/2024Reported from Appropriations (21-Y 0-N) (see vote tally)
02/07/2024Read first time
02/08/2024Read second time
02/08/2024Committee substitute agreed to 24106019D-H1
02/08/2024Engrossed by House - committee substitute HB93H1
02/09/2024Read third time and passed House BLOCK VOTE (96-Y 0-N)
02/09/2024VOTE: Block Vote Passage (96-Y 0-N) (see vote tally)
02/12/2024Constitutional reading dispensed
02/12/2024Referred to Committee on Education and Health
02/19/2024Assigned Education and Health Sub: Health
02/22/2024Reported from Education and Health (15-Y 0-N) (see vote tally)
02/22/2024Rereferred to Finance and Appropriations
02/29/2024Reported from Finance and Appropriations (14-Y 0-N) (see vote tally)
03/04/2024Constitutional reading dispensed (40-Y 0-N)
03/05/2024Read third time
03/05/2024Passed Senate (40-Y 0-N)
03/25/2024Enrolled
03/25/2024Bill text as passed House and Senate (HB93ER)
03/25/2024Signed by President
03/26/2024Signed by Speaker
03/27/2024Enrolled Bill communicated to Governor on March 27, 2024
03/27/2024G Governor's Action Deadline 11:59 p.m., April 8, 2024
04/04/2024G Approved by Governor-Chapter 375 (effective 7/1/25)
04/04/2024G Acts of Assembly Chapter text (CHAP0375)

Comments

Jenny M Decker writes:

As a person recently diagnosed with alpha-gal syndrome, it's difficult to impress upon others the magnitude of difficulty in managing exposure to allergens. Two things in particular make alpha-gal particularly problematic: the lack of education in the medical community, and the lack of transparent labeling and sourcing of ingredients for food and medications.

Besides alpha-gal, I'm being treated for cancer. Neither my doctors or pharmacists are fully aware of the potential allergens in the medications they're giving me to treat the cancer or it's side effects. It took me a week and about 6 different communications to find out if the inactive ingredients in my chemotherapy pills were plant or mammal derived. This is not the way I'd like to be spending my limited energy during cancer treatment.

If required reporting helps to track and educate the medical community about alpha-gal, it will be the start of a safer community for myself and the thousands of other AGS sufferers in Virginia.

Will Weaver writes:

This is a really good bill and I'm glad it has bipartisan support. Alpha-gal syndrome is very debilitating (Jenny's story is just one example of just how) and the public would greatly benefit from closer monitoring by VDH. I hope it passes.

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